Rough Patch...

This is not blog post I really want to write but I know it will help me feel better. I'm just so confused...

Hope has had some reflux issues from the beginning. Issues that I thought and was told are normal for infants to go through so I never thought much of it. I noticed around 3/4 months Hope was spitting up A LOT. She would projectile and it would just go everywhere. Being that she was so small and not keeping much of her food in it concerned me. It was suggested it could be a milk intolerance to the dairy in my milk which I was consuming a large amount of dairy products in these days. When I took the dairy out of my diet within a few days massive improvement. She would spit up maybe once a day a little bit instead of large amounts after every single feeding.

Infant reflux is supposed to improve especially when they start solids around 6 months. She seemed fine. She has always been a high needs baby and I would assume she just gets bored easily. At 9 months I was told anything except whole milk and honey is good to go. So I introduced yogurt to her and she loved it. Hope is a picky eater so I was ecstatic! Yogurt is full of probiotics, protein, healthy fat and calcium. I figured this is perfect since she doesnt eat much. I started giving it to her sometimes daily if not every other day. About a week after this (last week) I noticed her doing a strange swallowing noise. She would cry and do it but also be happy playing and do it. The best I could describe it as is a gulping noise. I thought maybe she had a sore throat.I called her pediatrician and he said yeah sounds like a little reflux. Nothing to be alarmed about. So I continued doing what we were doing. Giving her lots of new table foods, yogurt anything I can get in this picky monkeys mouth.

Last Thursday after giving Hope a yogurt and fruit meal I put her in her playpen after and visited with JP. She just started crying out of nowhere and I looked at her and she was doing this strange movement. I picked her up and she immediately stopped. I thought that was weird... I nursed her to sleep and she didnt do it anymore. The whole weekend I never fed her yogurt we were actually pretty busy and just doing regular baby food jars or the frozen food ive made her. Then Monday morning I got us back in our routine. I made her a BIG, baby bowl big, breakfast of rice cereal, two dollops of a fresh carton of whole fat yogurt and some fruit puree. She ate the whole thing. In my head I knew she was over eating but again she is picky and tiny I didnt feel right stopping her either. I picked her up and put her in her pack n play. I looked over at her about 20 minutes later and she was in the corner doing that strange movement again. I called her name and she snapped out of it and started crying for me..

I only saw it in the corner of my eye and missed it fully so I thought maybe its a weird thing she has discovered her body does. About three hours later I was feeding her sweet potatoes for lunch and she was fussing and then bent over and I then saw it up front. She did it again and something was not right. I immediately picked her up and I looked at the clock to call her pediatrician and of course it was 10 after noon... They lunch from 12 - 1:30! I took her upstairs to watch her play and I got this video of her doing it. This was the biggest one of them all.


http://www.youtube.com/watch?v=4pl2g2oPxYU

Due to her increasing reflux issues and the fact that she is so developmentally advanced and is present and can be brought out of these spasms if I interfere I was pointed in the direction of Sandifer Syndrome. This is a syndrome that affects 1% of babies with GERD (acid reflux). Basically its where the acid is so bad that it actually stimulates the vagus nerve. Her doctor thinks its a contender too when I bought that up. I just had to explain to him her symptoms and that she does in fact have reflux issues more than we both may have thought. So we are seeing a GI specialist tomorrow and Hope will have to fast all night and in the morning. They will give her a barium swallow to watch what it does. We will also be doing an EEG to rule out anything neurological for sure.

Please keep Hope in your prayers that this is just reflux because this can be controlled with the proper meds. She has continued having reflux symptoms despite giving her zantac prescribed by her doctor but she does seem a little better and happier. She has not had an episode in about 24 hours which is a good sign... I will keep you all updated.